Hello everyone!
It’s Jon! I’m back to being able to type. Still a little shaky, and it
makes it slower to type, but I can do it now!
I have been home now for a
little over a week, and it is so nice! Although they treat me really
well at the hospital, it’s just not the same as being home. I have been
able to walk around the house without a walker now for three days, and
even get up off of chairs that I never thought I could do before I came
home. It seems like I can do more and more every day. I am still trying
to get my physical therapy set up. It is turning out to be more
difficult than I thought it would be. But isn’t that how it always seems
to be.
We got word that my blood
shows that all of my donor chimerisms (my blood cells that had
Leukemia) are 100% that of my donor! This means that the donor cells
have taken over my body. As good as this sounds, we are still waiting
for a bone marrow biopsy in a few weeks to verify the same information.
The bone marrow test is more sensitive.
We also have been thrown
for a loop on our insurance. We have been on Cobra since I was let go
from Group Publishing last year. That means that I still get the same
insurance that Group employees have, but I have to pay both parts of the
premium, plus a 2% premium for the company managing the Cobra. (Gotta
pay the piper too:) They are changing over to Kaiser Permanente in
2013. My doctors are not in network for Kaiser so it complicates things.
They are working with me, and should be able to let me continue my care
with Dr. McSweeney. We were told that they refer the transplants to
CBCI anyways, so we saved them a step! We are still up in the air for a
second transplant, since I am doing so well and we received the news
about the chimerisms.
We are planning on taking
Hayden to see Santa soon. He seems so excited when we talk about Santa,
and when we see him on TV. I hope that he is that excited when he is
sitting on his lap. We are going to strategize the timing with his nap!
Last year he just did not know what to think, but was calm.
We would like to thank all of you that have donated to us. We really do appreciate it!
So many people have been
so generous. We are so grateful. We were able this week to buy Hayden
his first pair of shoes, they are black and green tennis shoes. We have
also had people ask us how they can help. If you are buying Christmas
presents (or anything else) from Amazon use this link, http://www.amazon.com/?&tag=jonsfight-20 with
no cost to you! (Click the link, then add item(s) to your cart). This
allows us to get credit towards things like diapers and wipes! Thanks!
We are also running
another silent auction on facebook. Come over to the new Jons Fight
facebook page, like us and then go to the photo album, Silent Auction.
You can also use this link, https://www.facebook.com/media/set/?set=a.105476432957004.11864.104707329700581&type=3.
Bid on the item by placing your bid in the comment section of that
particular photo. On Saturday, December 22 at noon we will close the
bidding and contact the winners. We are going to be in Denver on
Saturday so we are more than happy to deliver items, or we can deliver
on Sunday to Northern Colorado! We have 56 great items that you can bid
on for Christmas!
Thank you also to
everyone who reads my blog. It is great to get all of your cards and
feel the love and support that you are all sending my way. We
unfortunately have no way of adding a comment section to this blog, so
that is why we created the facebook page, but I am more than happy to
hear from you on my email, noh@mac.com.
Please continue to pray
for us, as we are transitioning to a new insurance through COBRA and we
are not sure what this will change, and also for all of us to stay
healthy and get through this cold and flu season without harm for the
second transplant.
And remember, as I always say, Life is still good, even with a few bumps in the road!
-Jon