Hello everyone! Its Laura again. Jon is still not updating the blog because his hands are so shaky.
HERE ARE WAYS TO HELP US... If you are buying Christmas presents (or anything else) from Amazon use this link, http://www.amazon.com/?&tag=jonsfight-20 with
no cost to you! (Click the link, then add item(s) to your cart). This
allows us to get credit for things like diapers and wipes! Thanks!
On Saturday we had a very
successful silent auction for our family. Jon and I want to thank
everyone who not only attended the silent auction but also bid on
items. We are very grateful for your support. We made over $2000
towards our $5000 deductible, although I do have to admit we are going
to use a few of the dollars to buy Hayden some Christmas presents. We
are thinking of putting the rest of the silent auction items that did
not sell online ASAP so that more people have a chance to bid on them
and so that you may have the items before Christmas. I am more than
happy to deliver them to you! I will post the link very soon!
Thank you also to those of you who have made an additional donation. We are very humbled by the generosity of others.
Just to update
everyone... Jon did not get to come home on Friday for the silent
auction because he was just not ready. He is still pushing really hard
to recover from the high dose of steroids, but it was a lot for his body
to deal with. He is making amazing strides towards coming home
though. We do miss him. I have been home since Thursday and it does
seem so different to be here without him, but I do enjoy being with
Hayden for a little while and teaching him about Christmas.
Jons White Count (immune
system) has been dropping from one of the medications that he is taking
for the CMV virus. As much as we are bothered by this, they are telling
us that it’s for the best. Sometimes you just have to roll the dice
and hurt one thing to save another. In this case, it is his immune
system being compromised at the moment to save his lungs and get over
the pneumonia and distress that caused the bleeding.
From what we are hearing,
when he does come home we will have a long road ahead of us. He is
working on walking again. I think he is doing tremendously well in the
short time that he has been trying. We have a wheel chair and a walker
for him to get used to. We were so excited to hear that MCR (Medical
Center of the Rockies) in Loveland will possibly be providing the
physical therapy that he needs when he comes home. Since it is only
15-20 minutes from our home this should make it much easier on us.
The last couple of weeks
had definitely thrown me for a loop. I am usually not as weepy or
grumpy as many of you have seen lately and I am so sorry if I came
across that way to anyone. We do love all of you and are so grateful
for the support we have been receiving. This was the first time since
the diagnosis that I felt I was without my partner and love of my life
for 5 ½ days and I am so happy that we can communicate again. Reality
definitely sets in when something like this happens.
Thank you to everyone
also who reads Jon’s blog. I know that he feels the love from everyone
and is happy about it. We unfortunately have no way of adding a comment
section to this blog but he is more than happy to hear from you on
either his facebook page, or his email, noh@mac.com.
Please continue to pray
for us, as we are transitioning to a new insurance through COBRA and we
are not sure what this will change, and also for Jon to stay healthy and
get through this cold and flu season without harm for the second
transplant.
And remember, as Jon always says, "Life is still good, even with a few bumps in the road!"
Laura