Wednesday, September 18, 2013

My Second Transplant - Day +195




Welcome to the new Jons Fight website.  We have chosen to change it up and combine it all into one great place! Some of the new things on the website are:

  • Blog
    • Reaction check box, at the bottom of each blog so you can voice your opinion
    • Comment section
    • A suggestion button at the bottom of each blog so you can share it on your favorite sites
  • My photography, some samples of my favorite photos (they will be on sale very soon)
  • Staying healthy, we would love to pass on how we have kept me safe for over two years!
  • Ways to help, we will have more fundraising opportunities to help us pay Jons medical expenses
  • Monthly drawings to win great stuff
  • An explanation of Leukemia for a better understanding of what Jon has
  • A simple anonymous donate button

Getting better is sure a bumpy road!

I had a doctors appointment yesterday with Dr. McSweeney, and it seems like everything is going in a good direction.  But as many of you know there are always bumps in every road - I am just glad that my team of doctors at CBCI have found a way to make the trip as smooth as possible!

The bad news is that my immune system is not doing so well lately and having trouble staying where we would ideally like it to be to keep me safe.  I have dropped down to 320 (below 1000 is not very good) so for now I will not be socializing - or leaving the house.

The good news is that my bone marrow biopsy came back clear!! Yay! That means that the initial results show I do not have any leuko cells in there and that I am still 100% donor!! Whoot, Whoot!! So, my meds are keeping my immune system surpressed, which is not unusual and may do so for much longer - or the rest of my life (some people have had that happen).

CO 60 Trailer Park Flooded
As many of you already know, our little town of Milliken was put onto the map this week due to the flooding.  We did not have any issues at our house, thank goodness. But we did live on an island for almost 3 days! I would have preferred Hawaii or the Caribbean, but the mountain view will do! The streets seem to be opening up quicker than we thought! Thanks CDOT, and Weld County for the hard work they are doing and the great way they communicated with us throughout this whole storm. We did have a county road that was good/bad for a couple of days to use, but it was very weird to be cut off from everywhere.
Flooding in Milliken CO 60 and SH257

We have always had God, or an angel he sent down to us, sitting next to us this entire time and it happened again! I was in the middle of changing insurance, and because it is not always a smooth transition, no matter how far ahead you plan, CBCI helped me get an extra weeks worth of medication just in case.  Well, then we were stuck in our little town with no way of getting out, and I amazingly had enough medication (that I normally would not have had)!  Its incredible - how else can you explain it. The next week after receiving my additional meds we get stuck? There is no explanation other than GOD.

Laura has been really busy this week getting all of our photos, hard drives, etc. into a safe place and also packing all of our stuff so that we did not lose anything just in case and we could evacuate, which happened almost twice.

As you can see we have some great fundraisers going on...

You can vote for your favorite t-shirt design and in two weeks the winning t-shirt will be available at Custom Ink for sale! We will post a link here to buy it on October 1! Also, we have a pre-order sale for Jons 2013 Limited Edition photographic Christmas cards coming soon! They will be ready by November 1 for you to send out to all of your friends and family! And last but definitely not least, Laura is making clear bags in three sizes. And yes, they do follow the new regulations to bring into every stadium in the U.S. currently. They are available with orange, black, blue, crimson, and green handles! We will have pictures and ordering information available very soon! For more information on fundraisers and ways to help, please visit our ways to help page!

As always,
Life is still good, even with a few bumps in the road!
Jon