Hello everyone!
I am so sorry that it has
taken me so long to update my blog. I have had issues with had tremors
that make it hard to type. I still have them, so this is going to be a
little shorter than some of my other blogs have been.
Today is discharge day
for me! I get to go “home”! Well, Kinda home, I will be living with my
brother’s family for the next couple of months while I recover from the
second transplant. My doctors require that I stay within 30 minutes of
the hospital in case of problems.
I am so excited, I get to
see Hayden today!!!! The best part of it is that he has no clue! He
will be so surprised! It has been 6 weeks and 5 days since I last got to
see him (in person.) I can hardly wait!!!!! :)
I have been in the
hospital longer this stay than any previous stay because of some graph
vs host disease. (GVHD) This time I got this in my liver. This cause me
to turn yellow. My skin and eyes were very yellow, and my skin itches
really bad. (It’s hard to stop scratching.) Even though this sounds bad,
it is actually really good. It means that my new bone marrow is
fighting off the old, and that also means that I will be more likely to
be able to fight off any leukemia if it were to return.
Speaking of the leukemia,
I had a bone marrow biopsy about a week ago. The results are in, and
they saw no signs of leukemia! They also have told me that my bone
marrow is showing 100% new donor. This is great, and it means that my
body is doing what it should to make the adjustments to the new immune
system.
I have been told that I
am extremely rare. Well, many of you would say that too... :) But the
doctors are saying this because of my unique blood type transition. I am
one of very few people that will have had 3 different blood types. Here
is how it has progressed. I was born with type O+ blood. Then for my
first transplant, the donor had A+ blood. Now, for the second
transplant, my donor has B+ blood. So my blood type has changed from O+
-> A+, and will be transitioning to B+ in the next few months.
Because of these transitions, I am only allowed to receive O Blood. I
also am required to wear a medical bracelet stating such in case I have
to receive emergency medical care, and can’t communicate this directly
to the doctors and nurses.
And as I always say, Remember, Life is still good, even with a few bumps in the road!
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| Getting ready to go “Home” (I will be staying with my brothers family for the next couple of months because my doctors require me to be within 30 minutes of the hospital.) |