Wednesday, August 21, 2013

My Second Transplant Day +167



A sigh of relief today. Jon was really not feeling well last night and I had my parents on "keep your phones next to bed - call of baby duty - just in case", and this morning, after a long night of temperature checking, Jon is feeling great. It turns out that instead of a cold or flu, like we thought he may have had, he may have just had too much sun in the last couple of days that effected his gvh. We have had 90 degree days, and lots of outings with our little guy. This just added up and he began to not feel well.

We are still not absolutely sure that's what it was - but if he got over the flu or a cold in 12 hours then he's a mystery of science!

Oh wait, he has been told that he's a mystery of science already - okay well then maybe so! LOL. We are just very happy that he is feeling much better today!

Thanks for all of the prayers and good wishes!

Monday, August 19, 2013

My Second Transplant - Day +165

Hello everyone!  

Its a big day! I will tell you more about it later in this blog! 

We have been really busy the last month with all of the projects Laura is finishing up around the house while planning Haydens big number 2 and taking care of me! I need a nap just thinking about it - LOL!

On August 4th, Hayden turned 2! It is so crazy how big he is getting. For me, it seems like just yesterday that he was born. Last year Laura had a small 1st birthday party for him, but had planned to have a bigger party once I got out of the hospital and it ended up not happening because I was in the hospital so long. So as many of you can imagine Laura wanted to go BIG for this party!  And it was, a learning experience that is! This was our first kids party that we have ever thrown.

Just after his party, I found out that my counts were dropping. I was advised that I needed to be even more careful again. It also looked like I was getting a rash again. The last time it took a few months to get it to go away. This can be caused by too much time in the sun. The funny thing is that they treat this rash with UV light. Weird huh? At my next appointment, they said that it was not a GVHD rash. What a relief!!